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I write about DWP failures for a living – and now its the reason I’m losing my vital benefit

As an error means Rachel Charlton-Dailey loses her PIP, she reflects on just how fucked the system is

Rachel Charlton-Dailey by Rachel Charlton-Dailey
22 May 2024
in Opinion
Reading Time: 4 mins read
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I’m supposed to be writing about something completely different right now, but as I was working on that I got some news that made my blood curdle. The DWP has stopped my PIP (Personal Independence Payment).

An expected DWP PIP review

On 5 April, I received a text from the DWP saying the review into my PIP claim had opened. Even though the review period is four years and it’d only been two since my last review, I had been expecting this. They said the forms would be with me in two weeks. 

As a disabled person who has spent the last 20 years in the DWP system, this news filled me with dread. Once again I would have to dredge up the worst and most traumatic parts of my life, for someone who doesn’t know me or my conditions to decide if I was worthy of support. 

On 20 April I attempted to contact the PIP helpline because the form hadn’t turned up, but I was cut off after 45 minutes. I’d spent the day before across the media analysing the prime minister’s speech in which he declared unemployed disabled people the enemy.

Finally, on 25 April the forms turned up, with the deadline of 4 May. Allowing postage time that gave me just five days to complete the form – which was 40 pages long and required such information as whether I was incontinent. The day before this, a UN report on the government found them to have dangerously failed disabled people.

I sent the forms back on 30 April and heard nothing.

Writing on DWP chaos is my job

Whilst I waited the Tories unveiled their plans to “reform” the very benefit I was applying for.

They said that the financial assistance I and so many rely on (because life is so much more damn expensive as a disabled person) wasn’t practical. Instead, they proposed a system where people are given vouchers. This would work alongside disabled people being required to invoice their expenses to the DWP and have them paid back.

And I gladly ripped their plans to shreds. How are we supposed to wait for something to be paid back when we don’t have the money in the first place? Will our energy suppliers or housing take vouchers? All the while I pushed the nervous thoughts to the back of my mind about the fact that I could lose the benefit that enables me to live my life.

My own terrifying chaos

Then finally on Tuesday 21 May I received word. My PIP was being taken away, because apparently, I hadn’t returned the form in time.

I rang the helpline and waited over half an hour whilst trying not to cry. When I finally got through I tried to explain the situation to the advisor.

“Do you have proof of postage?”

“No, it was a free post envelope, your envelope”.

I was put on hold again, and when she came back she informed me a case manager would call me back. A little while later he did, and informed me my form hadn’t been received until 17 May – almost three weeks after I sent it. He told me that because the case had already been closed they’d have to submit a “mandatory consideration”, an appeal of sorts for them to reopen the case. 

To be clear this isn’t to decide whether they should award me the benefit. No, it’s to decide whether they’ll even look at the forms. The actual assessment could take over a year, as the current wait time is 59 weeks.

My DWP PIP entitlement, lost – and countless other people’s too

There’s no way of knowing whether this was the fault of the failing postal service or that the DWP simply hadn’t read it. I suspect a combination of both. Either way due to government error, I now will be without a vital benefit for around two months.

And I’m not the only one this has happened to.

When I shared my frustrations on Twitter I received dozens of replies and DMs from people all having the same or worse experiences. Forms being sent out past the deadline to return them, returned forms lost, benefits stopped because the DWP sent the forms to the wrong address, the list goes on and disabled people suffer because of the government’s incompetence. 

You have to laugh then (if I don’t I’ll cry) at the fact that the DWP is proposing an elaborate system where they reckon they’ll process thousands of expenses claims a month when they can’t even open the post they already get.

I see every day the cruelty that the DWP and this government subject disabled people to. However, I was truly lost for words that they so casually would just cut my benefits off, all because of their own error. 

The Tories are doing everything they can to blame disabled people for the state of public services, but you only have to look at the state of the DWP to see who’s really harming this country. 

14 years of a revolving door of ministers, slashed budgets, and carving off services to their mates has left the DWP on its knees. And disabled people are paying the price.

Featured image via the Canary

Tags: chronic illnessDepartment for Work and Pensions (DWP)disability
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Comments 3

  1. DrailD says:
    2 years ago

    Dear Rachel,
    Believe me, I TOTALLY sympathise with and understand your horrendous situation, and I salute your work in bringing the DWP’s systems and behaviour to a wider audience – I have many politicised disabled friends.
    Having experienced similar problems to yourself I know, when they can, they ALWAYS use Royal Mail Special Delivery with important or time restricted forms going to the DWP. (These forms can require doctors letters and other difficult to get supplementary forms and signatures).
    As I understand it, Special Delivery is the only mail service which tracks the mail at EVERY stage of the journey.
    I just felt people should be made aware of this, as it is worth it for peace of mind.
    Of course, cash-strapped disabled people could find just a few pounds for this extra postal security financially out of reach. And they SHOULDN’T have to resort to such a cost in the first place!
    I hope you get your frightening situation resolved quickly.
    Kindest regards,
    DrailD

    Reply
  2. billkruse says:
    2 years ago

    IIRC, mail didn’t used to go to the DWP until after it went to a special section of the Royal Mail to be checked for suspect devices and so on. It could sit in there for God knows how long before being forwarded to the actual DWP so it really did need to be tracked at every possible stage of the journey. It was widely understood using the prepaid reply envelope which came with forms invited disaster and that the envelope itself, once filled, should be stuffed into a covering envelope (or more likely a parcel in some cases) sent Special Delivery to take advantage of the tracking. Then when the DWP would claim non-delivery it could be established through the tracking the problem was with the Royal Mail sitting on the item rather than any tardiness in sending it on behalf of the claimant. There was considerable and understandable consternation about this when it was made public as it meant unqualified Royal Mail staff were being given access to claimant’s most intimate health details. I find myself wondering if this can still be the case given GDPR…
    However, I see from looking at the Govt site the procedure carried out by DWP personnel involves their creating scans of all documents received after which originals are returned to claimants and copies logged on to the system. It would be nice to think this was performed prompt upon receipt but knowing the DWP it seems more likely items received could be hanging around, again for God knows how long, before being opened, scanned and logged. The problems this can cause are obvious and no doubt account for the issues you’re having, underlining once again the necessity of accurate tracking.

    Reply
  3. BlimByrne says:
    2 years ago

    Send it ‘signed for’ on delivery, ALWAYS, costs coupla quid at a post office, you get a tracking number & you can lookup when it arrives- even if its just at an opening centre, its an excellent stick to use against DWP bullshit.
    Photocopy yr forms before u send em- most modern phones will take a photo of it.

    Reply

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