THIS PODCAST CONTAINS LANGUAGE AND CONTENT SOME PEOPLE MAY FIND OFFENSIVE. THE VIEWS EXPRESSED IN THIS EPISODE ARE THE OPINIONS OF THE HOST AND GUESTS.
Welcome to a special series of episodes of #ToppleUncaged!
Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple. But this week is different. Because it’s both Millions Missing and ME Awareness week. So, The Canary and I are bringing you content across seven days.
Myalgic Encephalomyelitis, commonly referred to as ME, is a chronic systemic neuroimmune disease. It affects an estimated 17 million people at least worldwide and around 250,000 people in the UK. It has been fraught with controversy. For decades – and often still to this day – the medical profession has not properly recognised it. People living with ME have been disbelieved, stigmatised, given incorrect treatment, or told it’s ‘all in their heads’. But campaign group ME Action Network (#MillionsMissing) and charity ME Association (#MEAwarenessWeek) aim to change this.
In the third of six daily podcasts, I caught up with author, charity founder and campaigner Jessica Taylor-Bearman, who also lives with severe ME, which has ravaged her body, at one point leaving her unable to speak. We discussed her groundbreaking book A Girl Behind Dark Glasses, what severe ME is like, the medical profession and her hopes for the future.
CanaryPod: #ToppleUncaged show notes 9 May 2019
Presented, produced, and edited by Steve Topple.
Sound engineering by Gav Pauze.
A song for ME: Blowin’ in the Wind by Rob McMullen:
Follow on Twitter:
Find out more about Gav Pauze.
Topple Uncaged Theme Music: Lost Souls by Lee Wrizzle.
Featured image via ME Action Network, The Canary and Jessica Taylor-Bearman
We need your help to keep speaking the truth
Every story that you have come to us with; each injustice you have asked us to investigate; every campaign we have fought; each of your unheard voices we amplified; we do this for you. We are making a difference on your behalf.
Our fight is your fight. You’ve supported our collective struggle every time you gave us a like; and every time you shared our work across social media. Now we need you to support us with a monthly donation.
We have published nearly 2,000 articles and over 50 films in 2021. And we want to do this and more in 2022 but we don’t have enough money to go on at this pace. So, if you value our work and want us to continue then please join us and be part of The Canary family.
In return, you get:
* Advert free reading experience
* Quarterly group video call with the Editor-in-Chief
* Behind the scenes monthly e-newsletter
* 20% discount in our shop
Almost all of our spending goes to the people who make The Canary’s content. So your contribution directly supports our writers and enables us to continue to do what we do: speaking truth, powered by you. We have weathered many attempts to shut us down and silence our vital opposition to an increasingly fascist government and right-wing mainstream media.
With your help we can continue:
* Holding political and state power to account
* Advocating for the people the system marginalises
* Being a media outlet that upholds the highest standards
* Campaigning on the issues others won’t
* Putting your lives central to everything we do
We are a drop of truth in an ocean of deceit. But we can’t do this without your support. So please, can you help us continue the fight?