THIS PODCAST CONTAINS LANGUAGE AND CONTENT SOME PEOPLE MAY FIND OFFENSIVE. THE VIEWS EXPRESSED IN THIS EPISODE ARE THE OPINIONS OF THE HOST AND GUESTS.
Welcome to series two of #ToppleUncaged!
Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple.
In a special episode, I focus on several under-recognised, often misdiagnosed, and sorely misunderstood illnesses.
Samantha Smith is a mum-of-two from Greater Manchester. As she says on her website:
I owned a young business and worked as a Psychotherapist and writer, until recently when my life was turned upside down and I learnt that my brain and spinal cord are being crushed under the weight of my skull. I became too ill to continue the career I had worked so hard for.
Samantha told me she was living with a rare sub-type of the genetic connective tissue disorder Ehlers-Danlos syndrome (EDS). But more than this, she had craniocervical instability (CCI) and tethered cord syndrome. The severity of the CCI meant she had weeks to live. So, she started fundraising to have life saving surgery in the US. But this was just the start of her story, which by anyone’s standards is remarkable and shocking in equal measure.
I caught up with Samantha for the #ToppleUncaged podcast. We talked about her medical journey, the lack of awareness and treatment available on the NHS, the stigma surrounding some chronic illnesses, and the charity she is in the process of launching.
CanaryPod: #ToppleUncaged meets… #SaveSamantha show notes:
Presented, produced and edited by Steve Topple.
Sound engineering by Gav Pauze.
Join the #SaveSamantha Facebook community.
Follow on Twitter:
Steve Topple @MrTopple; The Canary @TheCanaryUK; Samantha Smith @SaveSamantha_; Nicola Jeffery @NicolaCJeffery; Gav Pauze @PauzeRadio; Rai Star Music @rai_star113
Use the hashtags #ToppleUncaged #CanaryPod
Find out more about Gav Pauze.
Topple Uncaged Theme Music: Lost Souls by Lee Wrizzle.
A song for ME: Blowin’ in the Wind by Robert Saunders
Featured image via Steve Topple / Wikimedia – Maurice / Samantha Smith
We need your help ...
The coronavirus pandemic is changing our world, fast. And we will do all we can to keep bringing you news and analysis throughout. But we are worried about maintaining enough income to pay our staff and minimal overheads.
Now, more than ever, we need a vibrant, independent media that holds the government to account and calls it out when it puts vested economic interests above human lives. We need a media that shows solidarity with the people most affected by the crisis – and one that can help to build a world based on collaboration and compassion.
We have been fighting against an establishment that is trying to shut us down. And like most independent media, we don’t have the deep pockets of investors to call on to bail us out.
Can you help by chipping in a few pounds each month?