A severe ME/CFS patient in Pakistan is urgently fundraising for crucial surgery
In Pakistan, severely chronically ill disability advocate and survivor of domestic violence Nevra Liz Ahmed urgently needs surgery for a ...
Tag: ME/CFS
DWP strips severely chronically ill mother and disabled son of £8k a year in Universal Credit migration
The Department for Work and Pensions (DWP) Universal Credit mandatory managed migration has stripped a severely chronically ill and largely ...
A hospital in New Zealand discharged a young severe ME/CFS patient to a care home for pensioners
A hospital in New Zealand discharged a 34-year-old severe myalgic encephalomyelitis (ME/CFS) patient to a care home for pensioners. There, ...
A young woman with severe ME/CFS in Pakistan needs an in-person advocate – can you help?
A young woman, Nevra, who lives with severe myalgic encephalomyelitis (ME/CFS) is issuing an urgent call out for an in-person ...
Very severe ME/CFS patient LOSES appeal over sectioning, family says staff now ‘abusing’ her
Carla, a very severe myalgic encephalomyelitis (ME/CFS) patient has lost her appeal against West Middlesex hospital. Doctors sectioned Carla Naoum ...
The NHS public consultation is NOT accessible for chronically ill people. So, the Canary has stepped in.
The new Labour Party government has recently launched an NHS public consultation - to mixed responses. The Canary's Dr Julia ...
A long-term ME/CFS campaigner just launched a hospital care charter for ME – and it’s already taking off
Tuesday 29 October is an auspicious day for the myalgic encephalomyelitis (ME/CFS) community. Crucially, it marks three years to the ...
Rushed Off My Feet: a poem describes living with ME/CFS
Living with myalgic encephalomyelitis (ME/CFS) is physically devastating - but the social isolation that comes with it is often less ...
The NHS just sectioned a very severe ME/CFS patient under the Mental Health Act
NHS West Middlesex University Hospital has just placed very severe myalgic encephalomyelitis (ME/CFS) patient Carla Naoum under a Section 2 ...
Buried reports expose the DWP PIP process as a DISASTER for people with ME/CFS and EDS
A tranche of reports the Department for Work and Pensions (DWP) buried - including one for nearly two years - ...
Now severe ME/CFS patient Katiana has been forced onto a psych ward – by her parents
Abusive parents of a young woman in Greece who lives with severe ME/CFS have forced her onto a psychiatric ward ...
The Canary has a leaked copy of the second NHS eLearning module on ME/CFS. It’s not good.
The Canary has been leaked a draft copy of the second NHS eLearning module on myalgic encephalomyelitis (ME/CFS). It comes ...
It’s Dysautonomia Awareness Month – but we need to talk about EDS and ME/CFS
Every October, it's Dysautonomia Awareness Month: shedding light on a group of conditions that involve dysfunction of the autonomic nervous ...
Through the fog: toxic empathy and medical apathy in long Covid and ME/CFS
On Friday 27 September, the last day of the Maeve Boothby O’Neill inquest, we heard that a much needed specialist ...
3D room scans show the harrowing reality of life with severe ME, trapped in a neglectful household
A former architecture student living with severe myalgic encephalomyelitis (ME/CFS) has created a series of 3D room scans to show ...
An ME/CFS charity has just shamed itself again. So why do people still support it?
One of the biggest UK myalgic encephalomyelitis (ME/CFS) charities Action for ME (AFME) has been promoting a document pushing misinformation ...
Paralympics under fire for #EveryBodyMoves campaign – that EXCLUDES millions of disabled people
Sally Callow is the founder of campaigning social enterprise ME Foggy Dog which raises funds for a chronic illness. Currently, ...
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