CanaryPod: Topple Uncaged meets… the Millions Missing: Tina Rodwell

Topple Uncaged meets Tina Rodwell


Welcome to a special series of episodes of #ToppleUncaged!

Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple. But this week is different. Because it’s both Millions Missing and ME Awareness week. So, The Canary and I are bringing you content across seven days.

Millions Missing

Myalgic encephalomyelitis, commonly referred to as ME, is a chronic systemic neuroimmune disease. It affects at least 17 million people worldwide and around 250,000 people in the UK. It has been fraught with controversy. For decades – and often still to this day – the medical profession has not properly recognised it. People living with ME have been disbelievedstigmatised, given incorrect treatment, or told it’s ‘all in their heads’. But campaign group ME Action Network (#MillionsMissing) and charity the ME Association (#MEAwarenessWeek) aim to change this.

In the first of six daily podcasts, I caught up with campaigner and mother of a child with ME, Tina Rodwell. We discussed how the disease affects children, how government departments deal (or don’t) with them and their families, and the countless barriers and prejudices they face.

Listen below:

Read on...

CanaryPod: #ToppleUncaged show notes 7 May 2019

Presented, produced, and edited by Steve Topple.

Sound engineering by Gav Pauze.

A song for ME: Blowin’ in the Wind by Rob McMullen:

Follow on Twitter:

Steve Topple @MrTopple; The Canary @TheCanaryUK; Tina Rodwell @TinaRodwell1; ME Action Network @MEActNet; ME Association @MEAssociation; Gav Pauze @PauzeRadio.

Use the hashtags #ToppleUncaged #CanaryPod #MillionsMissing #MEAwarenessWeek #GoBlue4ME #MAIMES

Find out more about Gav Pauze.

Topple Uncaged Theme Music: Lost Souls by Lee Wrizzle.

Featured image via ME Action Network, The Canary and Tina Rodwell

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