THIS PODCAST CONTAINS LANGUAGE AND CONTENT SOME PEOPLE MAY FIND OFFENSIVE. THE VIEWS EXPRESSED IN THIS EPISODE ARE THE OPINIONS OF THE HOST AND GUESTS.
Welcome to a special series of episodes of #ToppleUncaged!
Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple. But this week is different. Because it’s both Millions Missing and ME Awareness week. So, The Canary and I are bringing you content across seven days.
Myalgic encephalomyelitis, commonly referred to as ME, is a chronic systemic neuroimmune disease. It affects at least 17 million people worldwide and around 250,000 people in the UK. It has been fraught with controversy. For decades – and often still to this day – the medical profession has not properly recognised it. People living with ME have been disbelieved, stigmatised, given incorrect treatment, or told it’s ‘all in their heads’. But campaign group ME Action Network (#MillionsMissing) and charity the ME Association (#MEAwarenessWeek) aim to change this.
In the first of six daily podcasts, I caught up with campaigner and mother of a child with ME, Tina Rodwell. We discussed how the disease affects children, how government departments deal (or don’t) with them and their families, and the countless barriers and prejudices they face.
CanaryPod: #ToppleUncaged show notes 7 May 2019
Presented, produced, and edited by Steve Topple.
Sound engineering by Gav Pauze.
A song for ME: Blowin’ in the Wind by Rob McMullen:
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Find out more about Gav Pauze.
Topple Uncaged Theme Music: Lost Souls by Lee Wrizzle.
Featured image via ME Action Network, The Canary and Tina Rodwell
- Find out more about the ME Action Network, the ME Association, Dr Myhill’s MAIMES campaign, and Fiigthback.
- Support the ME Action Network crowdfunder, and the ME Association’s #GoBlue4ME campaign.
- Read more articles on ME from The Canary.
- Join us so we can keep showing solidarity across different campaigns.
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